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LDN Appt. No. 2 - Pahavit's Universe — LiveJournal

pahavit
Date: 3-14-2008 11:22 PM
Subject: LDN Appt. No. 2
Security: Public
Tags:fibromyalgia, ldn, pain, stanford, study
LDN Appt. No. 2

I had my second appointment for the low-dose naltrexone treatment study yesterday.  I was given my first vial of pills for the next fortnight.  I was told they are the placebo.  I find it odd that I'm told right off the bat they are the placebo (comprised of cornstarch).  As to when the real drug will be given me, it is chosen at random and I won't be told.

Of course, all my radar is on high alert for the slightest little thing out of the ordinary: a new mannerism from J., a slightly different odor to the capsules, any subtle fluctuation in any of my myriad symptoms.  The test subjects have been told the placebo is identical to the drug in appearance.  We were also cautioned not to open up the capsules, which makes me suspect some differences can be found upon close inspection.  But in spite of the temptation to figure it out, I will play along and see what happens.  If the way I'm feeling undergoes a change, I don't want it to be due to my imagination.

There were more trigger point tests, hot/cold sensitivity tests, blood pressure readings both sitting and standing, and more questionnaires to fill out.  Oh, how I hate those questionnaires.  I hate having to think that minutely about all my symptoms and the quality of my sleep over the previous two weeks.  Those are things I'd rather ignore and get on with my day as best as I can.  All of this will be repeated at every visit, to track what changes.

I also had some blood drawn, to test for possible subsets to fibromyalgia.  There was a problem at the lab, and it took J. several minutes to get it sorted out (he was almost late for his next treatment study appointment).  It seems Stanford already had me in their system, which confused me because I'd never been to Stanford before.  But then I realized that I'd had a sleep study done 12 years ago at the Stanford Sleep Clinic, but it was in San Francisco, so I didn't think of it as Stanford.  They had me in the system, but with my old address.  It took a while for the lab to get brought up to speed on that.  Plus the fact that the study was paying for the labs and not me confused them a bit.  I'm so glad J. stayed there till it all got sorted out.

They took 6 tubes of blood.  I'm sure that's why I felt so tired later on that day.  I'm glad that won't be repeated at every visit.


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